Birthday

Sabrina turned 14 today, what an incredible thing! Love that little teenager!

Sick

Sabrina has been very sick, nausea, vomiting, fever, stuffy nose. Finally had to go to the doctor and get an antibiotic. She is doing a little better. Have been giving lots of different fluids and yogurt. She has drank v8 juice, and Dr. Oz's green drink. A little pudding and cereal, lots of being held. I puree a lot of her food and am always trying to get more nutrition and vitamins in her. Especially calories. She is still a little pale, but starting to feel better. She is such a little sweetheart!

Keeping her healthy

I have always done compressions, (at least thats what my doctor called them) on Sabrina to keep her lungs clean and healthy, I think every parent should learn to do this with any young child. Especially with trisomy 18 infants, by doing compressions on a regular basis her lungs have not had any fluid build up. I don't do as regularly now as I used to but I still do them a couple of times a week. I will right up an article on this and post in a few days.    

birthday

Sabrina is now 13, a milestone for someone with trisomy 18! She is such a little wonder, she just makes us happy everyday!
She still eats pureed food and has fun with her family, she has a walk about she gets in everyday. She does her leg exercises everyday. I spend a lot of time playing with her and singing to her, she tries to mimic things I say but her vocabulary is very very limited to moma, dada, and just a few others. She used to call her sister hava, but she hasn't seen her for so long she doesn't say that much.

Sabrina has a very hard time gaining weight, so she is on a high calorie diet, however for christmas this year I got a magic bullet. This has made pureeing her food so much easier, she gets salads and more fun food that was a lot harder to do in my blender. Today was a hard day for her, she didn't sleep well last night and had to have medicine for pain.  She has reflux so even with her medicine she has a hard time with the first few bites and then she does good.

Her Back

Sabrina's curve on her back has gotten worse and I am more aware of her paines and itches, she is home with me all the time. We do therapy and play and rest. She is such a little sweetheart. She always used to wake up with a smile, now sometimes she wakes up sad! This is so very hard, sometimes I just hold her and sing to her or talk to her. She still like to play at my table in the bedroom. Well more later!

Blue Angels

Sabrina' activities

Sabrina like to be in her walk about and watch TV! She likes to walk around the house on her own and explore her world. She has videos she like to watch too! She had her 12th birthday this year! This is an amazing thing for a trisomy 18 child, she is just so awesome and we love her so much!

\Sabrina watching her videos

Eating out with the family

We attended the make a wish Blue Angels air show on friday the 23rd of July in Idaho Falls ID. I really enjoyed the show, Sabrina, enjoyed all the people and some of the air show. She just likes to be around people so much and she is always glad when her brothers are their too