short video of Sabrina

Just an angel

Sometimes, when the day comes to an end and you know its time to rest you see this little sleeping one. She is so innocent and so sweet that you must stay just a while to watch over and just for a bit. She depends on us for so much just like a new born depend on their parents to take care of them to love and hold them. To help when they fall or get hurt.Their are so many who walk away by choice not knowing what they have been given. An opportunity to learn compassion and love above and beyond what they could have ever imagined. She has become one of the greatest teachers I have or will ever have, she is an incredible little girl!

Brina and her dad

Birthday

Sabrina turned 14 today, what an incredible thing! Love that little teenager!

Sick

Sabrina has been very sick, nausea, vomiting, fever, stuffy nose. Finally had to go to the doctor and get an antibiotic. She is doing a little better. Have been giving lots of different fluids and yogurt. She has drank v8 juice, and Dr. Oz's green drink. A little pudding and cereal, lots of being held. I puree a lot of her food and am always trying to get more nutrition and vitamins in her. Especially calories. She is still a little pale, but starting to feel better. She is such a little sweetheart!

Keeping her healthy

I have always done compressions, (at least thats what my doctor called them) on Sabrina to keep her lungs clean and healthy, I think every parent should learn to do this with any young child. Especially with trisomy 18 infants, by doing compressions on a regular basis her lungs have not had any fluid build up. I don't do as regularly now as I used to but I still do them a couple of times a week. I will right up an article on this and post in a few days.    

birthday

Sabrina is now 13, a milestone for someone with trisomy 18! She is such a little wonder, she just makes us happy everyday!
She still eats pureed food and has fun with her family, she has a walk about she gets in everyday. She does her leg exercises everyday. I spend a lot of time playing with her and singing to her, she tries to mimic things I say but her vocabulary is very very limited to moma, dada, and just a few others. She used to call her sister hava, but she hasn't seen her for so long she doesn't say that much.

Sabrina has a very hard time gaining weight, so she is on a high calorie diet, however for christmas this year I got a magic bullet. This has made pureeing her food so much easier, she gets salads and more fun food that was a lot harder to do in my blender. Today was a hard day for her, she didn't sleep well last night and had to have medicine for pain.  She has reflux so even with her medicine she has a hard time with the first few bites and then she does good.